Home > Moving from consultation to partnership: strategies for meaningful patient and public involvement (PPI) in research.

Duda, Natalia and Gitonga, Isaiah and Corrigan, Siobhán and Maguire, Rebecca (2024) Moving from consultation to partnership: strategies for meaningful patient and public involvement (PPI) in research. In: InPACT 2024, 20-22 April 2024, Porto.

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Purpose: We propose an interactive workshop to explore strategies for embedding patient and public involvement (PPI) throughout the research cycle, with the overarching goal of fostering meaningful collaboration and partnership between academics, practitioners, patients and members of the public. Background: Participatory approaches have gained significant recognition as a means of enhancing the quality, relevance and impact of research. While funding agencies and policy makers emphasize the importance of PPI, the practical challenges of involving contributors in research can lead to tokenistic or “box-ticking” practices. PPI partners often play consultative roles in the initial and end phases of projects, with little input in the entire research cycle.

Key Points: This workshop introduces the concept of embedded PPI, emphasizing patient and public empowerment through partnership. The session will provide a roadmap for co-creation of knowledge and provide strategies for meaningful involvement. Participants will be invited to explore benefits of and barriers to embedding PPI and will collaboratively identify strategies and skills for initiating and maintaining partnerships with stakeholders. Procedure: The workshop will consist of an in-person presentation and discussion centered around implementing PPI across the research cycle. Participants will engage in a hands-on group activity in which they will identify challenges to and strategies in the context of their own research. Through case studies and scenarios, facilitators will share their experience of participatory research. Participants: This workshop is designed for researchers, educators and students interested in enhancing the real-world impact of their research. 5-20 attendees are recommended for optimal interaction and discussion.

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