Home > Dail Eireann debate. Questions on promised legislation [Medicinal cannabis].

[Oireachtas] Dail Eireann debate. Questions on promised legislation [Medicinal cannabis]. (02 Jun 2021)

External website: https://www.oireachtas.ie/en/debates/debate/dail/2...


...Deputy Jackie Cahill: Epidyolex is a cannabis-based medication used to treat particular types of severe seizures. I have been working with a young 14-year-old girl and her family for a long time on enabling her to get access to this life-changing medication. Her father has previously appeared on the media where he gave a heartbreaking description of his daughter's situation and how it has been made so much worse by HSE inaction and bureaucracy. This young girl has an aggressive form of cancer and as a result also suffers from drop seizures. As a result of the cancer she has had to have one of her legs amputated. She cannot use her prosthetic leg until her seizures are under control and she can have more than half a dozen seizures a day. The best medical advice is telling us that if she is given access to Epidyolex, this cannabis-based drug, she has the best chance of getting these seizures under control. I have raised the reimbursement of Epidyolex on numerous occasions in this House. I have tabled parliamentary questions for the Minister for Health and I have written directly both to the Taoiseach and to the Minister on this issue. Every time this issue is raised, the HSE come back with the same, standard, bureaucratic, kick down-the-road answer. Can the Taoiseach ensure that Epidyolex is reimbursed to the people who need it so badly? 

Micheál Martin, The Taoiseach: I thank the Deputy as I know of his commitment in respect of this case. My sympathy goes out to the family and to the young girl as well who is going through considerable trauma. I will engage with the Department of Health. Quite a number of patients on medical cannabis get reimbursed if the product is imported under an import licence. The medical cannabis access programme has now been developed. I will engage with the Minister and the HSE in respect of this particular case and I will talk to the Deputy again about it.

Item Type
Dail Debates
Publication Type
Irish-related
Drug Type
Cannabis, Prescription/Over the counter
Intervention Type
Drug therapy
Date
2 June 2021
EndNote
Related (external) link

Repository Staff Only: item control page